Metode Telenursing Keluarga untuk Meningkatkan Perawatan Paliatif Pasien Kanker Stadium Lanjut di Masa Pandemi COVID-19
Abstract
This study aims to provide an overview of the telenursing method used by families undergoing palliative care programs for advanced cancer patients during the COVID-19 pandemic. The method used is a qualitative design with a phenomenological approach model. Data collection techniques were carried out through in-depth interviews with six participants and were taken based on the snowball sampling method. The results showed that when undergoing a palliative care program, the experience experienced by the family was worried about being infected with COVID-19 and there was patient non-compliance in undergoing the palliative care therapy program, such as doing excessive physical activity, taking drugs irregularly and consuming prohibited foods. In conclusion, it is necessary to increase the telenursing method's ability for families undergoing palliative care programs for advanced cancer patients during the COVID-19 pandemic, especially in improving the ability to communicate with patients and the use of information technology.
Keywords: COVID-19, Cancer, Palliative Care, Telenursing
References
De Albornoz, S. C., Sia, K. L., & Harris, A. (2021). The Effectiveness of Teleconsultations in Primary Care: Systematic Review. Journal Family Practice, 39(1), 168-182. https://doi.org/10.1093/fampra/cmab077
Dessie, G., Burrowes, S., Mulugeta, H., Haile, D., Negess, A., Jara, D., Alem, G., Tesfaye, B., Zeleke, H., Gualu, T., Getaneh, T., Kibret, G. D., Amare, D., Worku Mengesha, E., Wagnew, F., & Khanam, R. (2021). Effect of A Self-Care Educational Intervention to Improve Self-Care Adherence among Patients with Chronic Heart Failure: A Clustered Randomized Controlled Trial in Northwest Ethiopia. BMC Cardiovascular Disorders, 21(1), 1–11. https://doi.org/10.1186/s12872-021-02170-8
Dipasquale, A., Persico, P., Lorenzi, E., Rahal, D., Santoro, A., & Simonelli, M. (2021). COVID-19 Lung Injury as a Primer for Immune Checkpoint Inhibitors (ICIS)-Related Pneumonia in a Patient Affected by Squamous Head and Neck Carcinoma Treated with PD-L1 Blockade: A Case Report. Journal Immunother Cancer, 9(2), 1-6. https://doi.org/10.1136/jitc-2020-001870
Gashu, K. D., Gelaye, K. A., & Tilahun, B. (2021). Adherence to TB Treatment Remains Low during Continuation Phase among Adult Patients in Northwest Ethiopia. BMC Infectious Diseases, 21(725), 1-10. https://doi.org/10.1186/s12879-021-06428-6
Goldman, J. D., & Ascierto, P. A. (2021). Perspectives on COVID-19 and Cancer Immunotherapy: A Review Series. Journal Immunother Cancer, 9(3), 9–10. https://doi.org/10.1136/jitc-2021-002489
Guerra, C. A., Heintz-Buschart, A., Sikorski, J., Chatzinotas, A., Guerrero-RamÃrez, N., Cesarz, S., Beaumelle, L., Rillig, M. C., Maestre, F. T., Delgado-Baquerizo, M., Buscot, F., Overmann, J., Patoine, G., Phillips, H. R. P., Winter, M., Wubet, T., Küsel, K., Bardgett, R. D., Cameron, E. K., Eisenhauer, N. (2020). Blind Spots in Global Soil Biodiversity and Ecosystem Function Research. Nature Communications, 11(1), 1–13. https://doi.org/10.1038/s41467-020-17688-2
Islam, I., Nelson, A., Longo, M., & Byrne, A. (2021). Before the 2020 Pandemic: An Observational Study Exploring Public Knowledge, Attitudes, Plans, and Preferences Towards Death and End of Life Care in Wales. BMC Palliative Care, 20(1), 1–12. https://doi.org/10.1186/s12904-021-00806-2
Li, M., Shapiro, G. K., Klein, R., Barbeau, A., Rydall, A., Bell, J. A. H., Nissim, R., Hales, S., Zimmermann, C., Wong, R. K. S., & Rodin, G. (2021). Medical Assistance in Dying in patients with Advanced Cancer and Their Caregivers: A Mixed Methods Longitudinal Study Protocol. BMC Palliative Care, 20(1), 1–13. https://doi.org/10.1186/s12904-021-00793-4
Macrae, M. C., Fazal, O., & O’Donovan, J. (2020). Community Health Workers in Palliative Care Provision in Low-Income and Middle-Income Countries: A Systematic Scoping Review of the Literature. BMJ Global Health, 5(5), 1–10. https://doi.org/10.1136/bmjgh-2020-002368
Mallon, A., Hasson, F., Casson, K., Slater, P., & McIlfatrick, S. (2021). Young Adults Understanding and Readiness to Engage with Palliative Care: Extending the Reach of Palliative Care Through a Public Health Approach: A Qualitative Study. BMC Palliative Care, 20(1), 1–13. https://doi.org/10.1186/s12904-021-00808-0
Mills, J., Fox, J., Damarell, R., Tieman, J., & Yates, P. (2021). Palliative Care Providers’ Use of Digital Health and Perspectives on Technological Innovation : A National Study. BMC Palliat Care, 20(124), 1-10. https://doi.org/10.1186/s12904-021-00822-2
Ohmura, S., Marchetto, A., Orth, M. F., Li, J., Jabar, S., Ranft, A., Vinca, E., Ceranski, K., Carreño-Gonzalez, M. J., Romero-Pérez, L., Wehweck, F. S., Musa, J., Bestvater, F., Knott, M. M. L., Hölting, T. L. B., Hartmann, W., Dirksen, U., Kirchner, T., Cidre-Aranaz, F., & Grünewald, T. G. P. (2021). Translational Evidence for RRM2 as a Prognostic Biomarker and Therapeutic Target in Ewing Sarcoma. Molecular Cancer, 20(97), 1–7. https://doi.org/10.1186/s12943-021-01393-9
Padila, P., Lina, L., Febriawati, H., Agustina, B., & Yanuarti, R. (2018). Home Visit Berbasis Sistem Informasi Manajemen Telenursing. Jurnal Keperawatan Silampari, 2(1), 217-235. https://doi.org/10.31539/jks.v2i1.305
Pang, Y., Zhang, X., Gao, R., Xu, L., Shen, M., Shi, H., Li, Y., & Li, F. (2021). Efficacy of Web-Based Self-Management Interventions for Depressive Symptoms : A Meta-Analysis of Randomized Controlled Trials. BMC Psychiatry 21(398), 1-13. https://doi.org/10.1186/s12888-021-03396-8
Passaro, A., Bestvina, C., Velez Velez, M., Garassino, M. C., Garon, E., & Peters, S. (2021). Severity of COVID-19 in Patients with Lung Cancer: Evidence and Challenges. Journal Immunother Cancer, 9(3), 1–10. https://doi.org/10.1136/jitc-2020-002266
Schoenmaekers, J. J. A. O., Hendriks, L. E. L., & Van den Beuken-van Everdingen, M. H. J. (2020). Palliative Care for Cancer Patients during the COVID-19 Pandemic, with Special Focus on Lung Cancer. Frontiers in Oncology, 10, 1–5. https://doi.org/10.3389/fonc.2020.01405
Sussman, T., Kaasalainen, S., Lawrence, J., Hunter, P. V., Bourgeois-Guerin, V., & Howard, M. (2021). Using a Self-Directed Workbook to Support Advance Care Planning with Long Term Care Home Residents. BMC Palliative Care, 20(1), 1–12. https://doi.org/10.1186/s12904-021-00815-1
Thom, B., Benedict, C., Friedman, D. N., Watson, S. E., Zeitler, M. S., & Chino, F. (2021). Economic Distress, Financial Toxicity, and Medical Costâ€Coping in Young Adult Cancer Survivors during the COVIDâ€19 Andemic: Findings from an Online Sample. Journal Cancer, 127(23), 1–11. https://doi.org/10.1002/cncr.33823
Tsamakis, K., Rizos, E., Manolis, A., Chaidou, S., Kympouropoulos, S., Spartalis, E., Spandidos, D., Tsiptsios, D., & Triantafyllis, A. (2020). COVID-19 Pandemic and Its Impact on Mental Health of Healthcare Professionals. Experimental and Therapeutic Medicine, 19(6), 3451–3453. https://doi.org/10.3892/etm.2020.8646
Valdés-Stauber, J., Stabenow, U., Böttinger, J., Kramer, S., & Kilian, R. (2021). Divergent Patterns of Confrontation with Death Using the Anticipated Farewell to Existence Questionnaire (AFEQT): A Cross-Sectional Comparative Study of Four Samples with Increasing Proximity to Death. BMC Palliative Care, 20(1), 1–17. https://doi.org/10.1186/s12904-021-00818-y
Xu, J., Zhao, M., Vrosgou, A., Chin, N., Yu, W., Liu, C., Zhang, H., Ding, C., Roth, N. W., Pan, Y., Liu, L., Wang, Y., & Wang, Y. (2021). Barriers to Medication Adherence in a Rural- Urban Dual Cconomy : A Multi-Stakeholder Qualitative Study. BMC Health Services Research, 21(799), 1-9. https://doi.org/10.1186/s12913-021-06789-3
Dessie, G., Burrowes, S., Mulugeta, H., Haile, D., Negess, A., Jara, D., Alem, G., Tesfaye, B., Zeleke, H., Gualu, T., Getaneh, T., Kibret, G. D., Amare, D., Worku Mengesha, E., Wagnew, F., & Khanam, R. (2021). Effect of A Self-Care Educational Intervention to Improve Self-Care Adherence among Patients with Chronic Heart Failure: A Clustered Randomized Controlled Trial in Northwest Ethiopia. BMC Cardiovascular Disorders, 21(1), 1–11. https://doi.org/10.1186/s12872-021-02170-8
Dipasquale, A., Persico, P., Lorenzi, E., Rahal, D., Santoro, A., & Simonelli, M. (2021). COVID-19 Lung Injury as a Primer for Immune Checkpoint Inhibitors (ICIS)-Related Pneumonia in a Patient Affected by Squamous Head and Neck Carcinoma Treated with PD-L1 Blockade: A Case Report. Journal Immunother Cancer, 9(2), 1-6. https://doi.org/10.1136/jitc-2020-001870
Gashu, K. D., Gelaye, K. A., & Tilahun, B. (2021). Adherence to TB Treatment Remains Low during Continuation Phase among Adult Patients in Northwest Ethiopia. BMC Infectious Diseases, 21(725), 1-10. https://doi.org/10.1186/s12879-021-06428-6
Goldman, J. D., & Ascierto, P. A. (2021). Perspectives on COVID-19 and Cancer Immunotherapy: A Review Series. Journal Immunother Cancer, 9(3), 9–10. https://doi.org/10.1136/jitc-2021-002489
Guerra, C. A., Heintz-Buschart, A., Sikorski, J., Chatzinotas, A., Guerrero-RamÃrez, N., Cesarz, S., Beaumelle, L., Rillig, M. C., Maestre, F. T., Delgado-Baquerizo, M., Buscot, F., Overmann, J., Patoine, G., Phillips, H. R. P., Winter, M., Wubet, T., Küsel, K., Bardgett, R. D., Cameron, E. K., Eisenhauer, N. (2020). Blind Spots in Global Soil Biodiversity and Ecosystem Function Research. Nature Communications, 11(1), 1–13. https://doi.org/10.1038/s41467-020-17688-2
Islam, I., Nelson, A., Longo, M., & Byrne, A. (2021). Before the 2020 Pandemic: An Observational Study Exploring Public Knowledge, Attitudes, Plans, and Preferences Towards Death and End of Life Care in Wales. BMC Palliative Care, 20(1), 1–12. https://doi.org/10.1186/s12904-021-00806-2
Li, M., Shapiro, G. K., Klein, R., Barbeau, A., Rydall, A., Bell, J. A. H., Nissim, R., Hales, S., Zimmermann, C., Wong, R. K. S., & Rodin, G. (2021). Medical Assistance in Dying in patients with Advanced Cancer and Their Caregivers: A Mixed Methods Longitudinal Study Protocol. BMC Palliative Care, 20(1), 1–13. https://doi.org/10.1186/s12904-021-00793-4
Macrae, M. C., Fazal, O., & O’Donovan, J. (2020). Community Health Workers in Palliative Care Provision in Low-Income and Middle-Income Countries: A Systematic Scoping Review of the Literature. BMJ Global Health, 5(5), 1–10. https://doi.org/10.1136/bmjgh-2020-002368
Mallon, A., Hasson, F., Casson, K., Slater, P., & McIlfatrick, S. (2021). Young Adults Understanding and Readiness to Engage with Palliative Care: Extending the Reach of Palliative Care Through a Public Health Approach: A Qualitative Study. BMC Palliative Care, 20(1), 1–13. https://doi.org/10.1186/s12904-021-00808-0
Mills, J., Fox, J., Damarell, R., Tieman, J., & Yates, P. (2021). Palliative Care Providers’ Use of Digital Health and Perspectives on Technological Innovation : A National Study. BMC Palliat Care, 20(124), 1-10. https://doi.org/10.1186/s12904-021-00822-2
Ohmura, S., Marchetto, A., Orth, M. F., Li, J., Jabar, S., Ranft, A., Vinca, E., Ceranski, K., Carreño-Gonzalez, M. J., Romero-Pérez, L., Wehweck, F. S., Musa, J., Bestvater, F., Knott, M. M. L., Hölting, T. L. B., Hartmann, W., Dirksen, U., Kirchner, T., Cidre-Aranaz, F., & Grünewald, T. G. P. (2021). Translational Evidence for RRM2 as a Prognostic Biomarker and Therapeutic Target in Ewing Sarcoma. Molecular Cancer, 20(97), 1–7. https://doi.org/10.1186/s12943-021-01393-9
Padila, P., Lina, L., Febriawati, H., Agustina, B., & Yanuarti, R. (2018). Home Visit Berbasis Sistem Informasi Manajemen Telenursing. Jurnal Keperawatan Silampari, 2(1), 217-235. https://doi.org/10.31539/jks.v2i1.305
Pang, Y., Zhang, X., Gao, R., Xu, L., Shen, M., Shi, H., Li, Y., & Li, F. (2021). Efficacy of Web-Based Self-Management Interventions for Depressive Symptoms : A Meta-Analysis of Randomized Controlled Trials. BMC Psychiatry 21(398), 1-13. https://doi.org/10.1186/s12888-021-03396-8
Passaro, A., Bestvina, C., Velez Velez, M., Garassino, M. C., Garon, E., & Peters, S. (2021). Severity of COVID-19 in Patients with Lung Cancer: Evidence and Challenges. Journal Immunother Cancer, 9(3), 1–10. https://doi.org/10.1136/jitc-2020-002266
Schoenmaekers, J. J. A. O., Hendriks, L. E. L., & Van den Beuken-van Everdingen, M. H. J. (2020). Palliative Care for Cancer Patients during the COVID-19 Pandemic, with Special Focus on Lung Cancer. Frontiers in Oncology, 10, 1–5. https://doi.org/10.3389/fonc.2020.01405
Sussman, T., Kaasalainen, S., Lawrence, J., Hunter, P. V., Bourgeois-Guerin, V., & Howard, M. (2021). Using a Self-Directed Workbook to Support Advance Care Planning with Long Term Care Home Residents. BMC Palliative Care, 20(1), 1–12. https://doi.org/10.1186/s12904-021-00815-1
Thom, B., Benedict, C., Friedman, D. N., Watson, S. E., Zeitler, M. S., & Chino, F. (2021). Economic Distress, Financial Toxicity, and Medical Costâ€Coping in Young Adult Cancer Survivors during the COVIDâ€19 Andemic: Findings from an Online Sample. Journal Cancer, 127(23), 1–11. https://doi.org/10.1002/cncr.33823
Tsamakis, K., Rizos, E., Manolis, A., Chaidou, S., Kympouropoulos, S., Spartalis, E., Spandidos, D., Tsiptsios, D., & Triantafyllis, A. (2020). COVID-19 Pandemic and Its Impact on Mental Health of Healthcare Professionals. Experimental and Therapeutic Medicine, 19(6), 3451–3453. https://doi.org/10.3892/etm.2020.8646
Valdés-Stauber, J., Stabenow, U., Böttinger, J., Kramer, S., & Kilian, R. (2021). Divergent Patterns of Confrontation with Death Using the Anticipated Farewell to Existence Questionnaire (AFEQT): A Cross-Sectional Comparative Study of Four Samples with Increasing Proximity to Death. BMC Palliative Care, 20(1), 1–17. https://doi.org/10.1186/s12904-021-00818-y
Xu, J., Zhao, M., Vrosgou, A., Chin, N., Yu, W., Liu, C., Zhang, H., Ding, C., Roth, N. W., Pan, Y., Liu, L., Wang, Y., & Wang, Y. (2021). Barriers to Medication Adherence in a Rural- Urban Dual Cconomy : A Multi-Stakeholder Qualitative Study. BMC Health Services Research, 21(799), 1-9. https://doi.org/10.1186/s12913-021-06789-3
