Faktor Dukungan Keluarga terhadap Kualitas Hidup Penderita Systemic Lupus Erithematosus (SLE)
DOI:
https://doi.org/10.31539/joting.v5i1.4969Abstract
This study aims to analyze the factors of family support that affect the quality of life of SLE sufferers. The method used is descriptive analytics with a cross-sectional approach. The results showed that family support for SLE sufferers was relatively good (57.8%); family support factors and emotional, instrumental, informational and appreciation support sub-variables that are related to the quality of life based on functional domains obtain a mean sample value of -0.068, social support = -0.0687, physical health = -0.068 and psychological = -0.068, the significant direction of the positive relationship (11.407), social support (10.865), physical health (11.015) and psychological (10.680) > 1.96. In conclusion, there is a significant relationship between family support and quality of life in SLE sufferers' functional and social support domain and physical and psychological health.
Keywords: Family Support, Quality of Life, Systemic Lupus Erythematosus
References
Boghadam, Z. B., Faezi, S. T., Zareian, A., & Rezaei, E. (2021). Experiences of Iranian Female Patients with Systemic Lupus Erythematosus: A Qualitative Study. Arch Rheumatology, 36(1), 120–128. https://archivesofrheumatology.org/abstract/1176
Elnady, B., Taha, A., Desouky, D. E., Abd-Elmakoud, S. F., Rageh, E. M., Algethami, A. M., Algethami, M, ten-Klooster, P. M., & Rasker, J. J. (2021). Impact of Sustained Remission on Quality of Life among Women with Rheumatoid Arthritis and Systemic Lupus Erythematosu. Rheumatology and Rehabilitation, 48(23), 1–9. https://doi.org/10.1186/s43166-021-00072-3
Idzharrusman, M., & Budhiana, J. (2022). Hubungan Dukungan Keluarga dengan Kualitas Hidup Pasien Gagal Ginjal Kronik RSUD Sekarwangi Kabupaten Sukabumi. Jurnal Keperawatan BSI, 10(1), 61–69. https://ejurnal.ars.ac.id/index.php/keperawatan/article/view/768
Juliansyah, H., & Nugrahawati, E. N. (2022). Pengaruh Resiliensi terhadap Kualitas Hidup pada Penderita Systemic Lupus Erythematosus. Bandung Conference Series: Psychology Science, 2(1), 380–386. https://proceedings.unisba.ac.id/index.php/BCSPS/article/view/1121
Kankaya, H., & Karadakovan, A. (2020). Effects of Web-Based Education and Counselling for Patients with Systemic Lupus Erythematosus. Lupus, 28(8), 884-891. https://doi.org/10.1177/0961203320928423
Katz, P., Wan, G. J., Daly, P., Topf, L., Connoly-Strong, E., Bostic, R., & Reed, M. L. (2020). Patient Reported Fare Frequency is Associated with Diminished Quality of Life and Family Role Functioning in Systemic Lupus Erythematosus. Quality of Life Research, 29(1), 3251–3261. https://doi.org/10.1007/s11136-020-02572-9
Leong, P., Huang, J., Chiou, J., Bai, Y., & Wei, J. C. (2021). The Prevalence and Incidence of Systemic Lupus Erythematosus in Taiwan: A Nationwide Population Based Study. Scientific Reports, 11, 1-8. https://doi.org/10.1038/s41598-021-84957-5
Masriwati, S. (2022). Hubungan Dukungan Keluarga dengan Kualitas Hidup Penderita Hipertensi di Rumah Sakit Umum Daerah Kota Kendari. Jurnal Anoa Keperawatan Mandala Waluya, 1(2), 65–75. htpss://doi.org/10.54883/jakmw.v1i2.16
Manalu, N. V. (2020). Dukungan Keluarga terhadap Kualitas Hidup Pasien Gagal Ginjal Kronik yang Menjalani Terapi di RS Advent Bandar Lampung. Jurnal Health Sains, 1(3), 1–7. https://doi.org/10.46799/jhs.v1i3.31
Nuraeni, E., Habibi, A., & Baejuri, M. L. (2020). Dukungan Keluarga dengan Kualitas Hidup Lansia Hipertensi di Puskesmas Balaraja. Prosiding Simposium Nasional Multidisiplin, 2, 1–9. https://jurnal.umt.ac.id/index.php/senamu/article/view/5740
Pradina, E. I, V., Marti, E., & Ratnawati, E. (2022). Hubungan antara Dukungan Keluarga dengan Kualitas Hidup pada Lansia di Padukuhan Pranan, Sendangsari, Minggir, Sleman. Jurnal Keperawatan Klinis dan Komunitas, 6(2), 112–124. https://doi: 10.22146/jkkk.75227.
Rosyidah, R., Astuti, J. S., & Michelino, D. M. D. (2022). Peran Dukungan Keluarga terhadap Resiliensi Keluarga pada Istri Tenaga Kerja Indonesia (TKI) di Kabupaten Bangkalan. 6(1), 66–74. https:/doi.org/10.30762/happiness.v6i1.476.
Shi, Y., Li, M., Liu, L., Wang, Z., Wang, Y., Zhao, J., Wang, Q., Tian, X., Li, M., & Zeng, X. (2020). Relationship between disease Activity, Organ Damage and Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus. Autoimmunity Reviews Journal, 20(1), 1–10. https://doi.org/10.1016/j.autrev.2020.102691
Silvia, W. (2022). Dukungan Keluarga dalam Perilaku Pelayanan Kesehatan. OSF Preprints, 3(4), 1-4. https://doi:10.31219/osf.io/uzhca
Subekti, K. E., & Dewi, S (2022). Dukungan Keluarga Berhubungan dengan Tingkat Kualitas Hidup Lansia. Jurnal Keperawatan Jiwa, 10(2), 403–410. doi.org/10.26714/jkj.10.2.2022.403-410
Suwanti, E., Andarmoyo, S., & Purwanti, L. E.. (2021). Hubungan Dukungan Keluarga dengan Kualitas Hidup Pasien Diabetes Melitus Tipe II. Health Sciences Journal, 5(1), 70–88. https://doi: 10.24269/hsj.v5i1.674
Ugarte-Gil, M., Gamboa-Cardenas, R. V., reategui-Sokolova, C., Medina-Chinchon, M., Zevallos, F., Elera-Fitzcarrald, C., Pimental-Quiroz, V., Cucho-Venegas, J. M., Rodriguez-Bellido, Z., Pastor-Asurza, C. A., Alarcon, G. S., & Perich-Campos, R. (2020). Better Health-Related Quality of Life in Systemic Lupus Erythematosus Predicted by Low Disease Activity State/Remission. American College of Rheumatology, 72(8), 1159–1162. https://doi//10.0.3.234/acr.24009
Wiraini, T. P., Zukhra, R. M., & Hasneli, Y. Hubungan Dukungan Keluarga dengan Kualitas Hidup Lansia pada Masa COVID-19. Health Care: Jurnal Kesehatan, 10(1), 44-53. https://doi.org/10.36763/healthcare.v10i1.99
Elnady, B., Taha, A., Desouky, D. E., Abd-Elmakoud, S. F., Rageh, E. M., Algethami, A. M., Algethami, M, ten-Klooster, P. M., & Rasker, J. J. (2021). Impact of Sustained Remission on Quality of Life among Women with Rheumatoid Arthritis and Systemic Lupus Erythematosu. Rheumatology and Rehabilitation, 48(23), 1–9. https://doi.org/10.1186/s43166-021-00072-3
Idzharrusman, M., & Budhiana, J. (2022). Hubungan Dukungan Keluarga dengan Kualitas Hidup Pasien Gagal Ginjal Kronik RSUD Sekarwangi Kabupaten Sukabumi. Jurnal Keperawatan BSI, 10(1), 61–69. https://ejurnal.ars.ac.id/index.php/keperawatan/article/view/768
Juliansyah, H., & Nugrahawati, E. N. (2022). Pengaruh Resiliensi terhadap Kualitas Hidup pada Penderita Systemic Lupus Erythematosus. Bandung Conference Series: Psychology Science, 2(1), 380–386. https://proceedings.unisba.ac.id/index.php/BCSPS/article/view/1121
Kankaya, H., & Karadakovan, A. (2020). Effects of Web-Based Education and Counselling for Patients with Systemic Lupus Erythematosus. Lupus, 28(8), 884-891. https://doi.org/10.1177/0961203320928423
Katz, P., Wan, G. J., Daly, P., Topf, L., Connoly-Strong, E., Bostic, R., & Reed, M. L. (2020). Patient Reported Fare Frequency is Associated with Diminished Quality of Life and Family Role Functioning in Systemic Lupus Erythematosus. Quality of Life Research, 29(1), 3251–3261. https://doi.org/10.1007/s11136-020-02572-9
Leong, P., Huang, J., Chiou, J., Bai, Y., & Wei, J. C. (2021). The Prevalence and Incidence of Systemic Lupus Erythematosus in Taiwan: A Nationwide Population Based Study. Scientific Reports, 11, 1-8. https://doi.org/10.1038/s41598-021-84957-5
Masriwati, S. (2022). Hubungan Dukungan Keluarga dengan Kualitas Hidup Penderita Hipertensi di Rumah Sakit Umum Daerah Kota Kendari. Jurnal Anoa Keperawatan Mandala Waluya, 1(2), 65–75. htpss://doi.org/10.54883/jakmw.v1i2.16
Manalu, N. V. (2020). Dukungan Keluarga terhadap Kualitas Hidup Pasien Gagal Ginjal Kronik yang Menjalani Terapi di RS Advent Bandar Lampung. Jurnal Health Sains, 1(3), 1–7. https://doi.org/10.46799/jhs.v1i3.31
Nuraeni, E., Habibi, A., & Baejuri, M. L. (2020). Dukungan Keluarga dengan Kualitas Hidup Lansia Hipertensi di Puskesmas Balaraja. Prosiding Simposium Nasional Multidisiplin, 2, 1–9. https://jurnal.umt.ac.id/index.php/senamu/article/view/5740
Pradina, E. I, V., Marti, E., & Ratnawati, E. (2022). Hubungan antara Dukungan Keluarga dengan Kualitas Hidup pada Lansia di Padukuhan Pranan, Sendangsari, Minggir, Sleman. Jurnal Keperawatan Klinis dan Komunitas, 6(2), 112–124. https://doi: 10.22146/jkkk.75227.
Rosyidah, R., Astuti, J. S., & Michelino, D. M. D. (2022). Peran Dukungan Keluarga terhadap Resiliensi Keluarga pada Istri Tenaga Kerja Indonesia (TKI) di Kabupaten Bangkalan. 6(1), 66–74. https:/doi.org/10.30762/happiness.v6i1.476.
Shi, Y., Li, M., Liu, L., Wang, Z., Wang, Y., Zhao, J., Wang, Q., Tian, X., Li, M., & Zeng, X. (2020). Relationship between disease Activity, Organ Damage and Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus. Autoimmunity Reviews Journal, 20(1), 1–10. https://doi.org/10.1016/j.autrev.2020.102691
Silvia, W. (2022). Dukungan Keluarga dalam Perilaku Pelayanan Kesehatan. OSF Preprints, 3(4), 1-4. https://doi:10.31219/osf.io/uzhca
Subekti, K. E., & Dewi, S (2022). Dukungan Keluarga Berhubungan dengan Tingkat Kualitas Hidup Lansia. Jurnal Keperawatan Jiwa, 10(2), 403–410. doi.org/10.26714/jkj.10.2.2022.403-410
Suwanti, E., Andarmoyo, S., & Purwanti, L. E.. (2021). Hubungan Dukungan Keluarga dengan Kualitas Hidup Pasien Diabetes Melitus Tipe II. Health Sciences Journal, 5(1), 70–88. https://doi: 10.24269/hsj.v5i1.674
Ugarte-Gil, M., Gamboa-Cardenas, R. V., reategui-Sokolova, C., Medina-Chinchon, M., Zevallos, F., Elera-Fitzcarrald, C., Pimental-Quiroz, V., Cucho-Venegas, J. M., Rodriguez-Bellido, Z., Pastor-Asurza, C. A., Alarcon, G. S., & Perich-Campos, R. (2020). Better Health-Related Quality of Life in Systemic Lupus Erythematosus Predicted by Low Disease Activity State/Remission. American College of Rheumatology, 72(8), 1159–1162. https://doi//10.0.3.234/acr.24009
Wiraini, T. P., Zukhra, R. M., & Hasneli, Y. Hubungan Dukungan Keluarga dengan Kualitas Hidup Lansia pada Masa COVID-19. Health Care: Jurnal Kesehatan, 10(1), 44-53. https://doi.org/10.36763/healthcare.v10i1.99
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2023-02-03
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