Faktor Dukungan Keluarga terhadap Kualitas Hidup Penderita Systemic Lupus Erithematosus (SLE)
Abstract
This study aims to analyze the factors of family support that affect the quality of life of SLE sufferers. The method used is descriptive analytics with a cross-sectional approach. The results showed that family support for SLE sufferers was relatively good (57.8%); family support factors and emotional, instrumental, informational and appreciation support sub-variables that are related to the quality of life based on functional domains obtain a mean sample value of -0.068, social support = -0.0687, physical health = -0.068 and psychological = -0.068, the significant direction of the positive relationship (11.407), social support (10.865), physical health (11.015) and psychological (10.680) > 1.96. In conclusion, there is a significant relationship between family support and quality of life in SLE sufferers' functional and social support domain and physical and psychological health.
Keywords: Family Support, Quality of Life, Systemic Lupus Erythematosus
References
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Elnady, B., Taha, A., Desouky, D. E., Abd-Elmakoud, S. F., Rageh, E. M., Algethami, A. M., Algethami, M, ten-Klooster, P. M., & Rasker, J. J. (2021). Impact of Sustained Remission on Quality of Life among Women with Rheumatoid Arthritis and Systemic Lupus Erythematosu. Rheumatology and Rehabilitation, 48(23), 1–9. https://doi.org/10.1186/s43166-021-00072-3
Idzharrusman, M., & Budhiana, J. (2022). Hubungan Dukungan Keluarga dengan Kualitas Hidup Pasien Gagal Ginjal Kronik RSUD Sekarwangi Kabupaten Sukabumi. Jurnal Keperawatan BSI, 10(1), 61–69. https://ejurnal.ars.ac.id/index.php/keperawatan/article/view/768
Juliansyah, H., & Nugrahawati, E. N. (2022). Pengaruh Resiliensi terhadap Kualitas Hidup pada Penderita Systemic Lupus Erythematosus. Bandung Conference Series: Psychology Science, 2(1), 380–386. https://proceedings.unisba.ac.id/index.php/BCSPS/article/view/1121
Kankaya, H., & Karadakovan, A. (2020). Effects of Web-Based Education and Counselling for Patients with Systemic Lupus Erythematosus. Lupus, 28(8), 884-891. https://doi.org/10.1177/0961203320928423
Katz, P., Wan, G. J., Daly, P., Topf, L., Connoly-Strong, E., Bostic, R., & Reed, M. L. (2020). Patient Reported Fare Frequency is Associated with Diminished Quality of Life and Family Role Functioning in Systemic Lupus Erythematosus. Quality of Life Research, 29(1), 3251–3261. https://doi.org/10.1007/s11136-020-02572-9
Leong, P., Huang, J., Chiou, J., Bai, Y., & Wei, J. C. (2021). The Prevalence and Incidence of Systemic Lupus Erythematosus in Taiwan: A Nationwide Population Based Study. Scientific Reports, 11, 1-8. https://doi.org/10.1038/s41598-021-84957-5
Masriwati, S. (2022). Hubungan Dukungan Keluarga dengan Kualitas Hidup Penderita Hipertensi di Rumah Sakit Umum Daerah Kota Kendari. Jurnal Anoa Keperawatan Mandala Waluya, 1(2), 65–75. htpss://doi.org/10.54883/jakmw.v1i2.16
Manalu, N. V. (2020). Dukungan Keluarga terhadap Kualitas Hidup Pasien Gagal Ginjal Kronik yang Menjalani Terapi di RS Advent Bandar Lampung. Jurnal Health Sains, 1(3), 1–7. https://doi.org/10.46799/jhs.v1i3.31
Nuraeni, E., Habibi, A., & Baejuri, M. L. (2020). Dukungan Keluarga dengan Kualitas Hidup Lansia Hipertensi di Puskesmas Balaraja. Prosiding Simposium Nasional Multidisiplin, 2, 1–9. https://jurnal.umt.ac.id/index.php/senamu/article/view/5740
Pradina, E. I, V., Marti, E., & Ratnawati, E. (2022). Hubungan antara Dukungan Keluarga dengan Kualitas Hidup pada Lansia di Padukuhan Pranan, Sendangsari, Minggir, Sleman. Jurnal Keperawatan Klinis dan Komunitas, 6(2), 112–124. https://doi: 10.22146/jkkk.75227.
Rosyidah, R., Astuti, J. S., & Michelino, D. M. D. (2022). Peran Dukungan Keluarga terhadap Resiliensi Keluarga pada Istri Tenaga Kerja Indonesia (TKI) di Kabupaten Bangkalan. 6(1), 66–74. https:/doi.org/10.30762/happiness.v6i1.476.
Shi, Y., Li, M., Liu, L., Wang, Z., Wang, Y., Zhao, J., Wang, Q., Tian, X., Li, M., & Zeng, X. (2020). Relationship between disease Activity, Organ Damage and Health-Related Quality of Life in Patients with Systemic Lupus Erythematosus. Autoimmunity Reviews Journal, 20(1), 1–10. https://doi.org/10.1016/j.autrev.2020.102691
Silvia, W. (2022). Dukungan Keluarga dalam Perilaku Pelayanan Kesehatan. OSF Preprints, 3(4), 1-4. https://doi:10.31219/osf.io/uzhca
Subekti, K. E., & Dewi, S (2022). Dukungan Keluarga Berhubungan dengan Tingkat Kualitas Hidup Lansia. Jurnal Keperawatan Jiwa, 10(2), 403–410. doi.org/10.26714/jkj.10.2.2022.403-410
Suwanti, E., Andarmoyo, S., & Purwanti, L. E.. (2021). Hubungan Dukungan Keluarga dengan Kualitas Hidup Pasien Diabetes Melitus Tipe II. Health Sciences Journal, 5(1), 70–88. https://doi: 10.24269/hsj.v5i1.674
Ugarte-Gil, M., Gamboa-Cardenas, R. V., reategui-Sokolova, C., Medina-Chinchon, M., Zevallos, F., Elera-Fitzcarrald, C., Pimental-Quiroz, V., Cucho-Venegas, J. M., Rodriguez-Bellido, Z., Pastor-Asurza, C. A., Alarcon, G. S., & Perich-Campos, R. (2020). Better Health-Related Quality of Life in Systemic Lupus Erythematosus Predicted by Low Disease Activity State/Remission. American College of Rheumatology, 72(8), 1159–1162. https://doi//10.0.3.234/acr.24009
Wiraini, T. P., Zukhra, R. M., & Hasneli, Y. Hubungan Dukungan Keluarga dengan Kualitas Hidup Lansia pada Masa COVID-19. Health Care: Jurnal Kesehatan, 10(1), 44-53. https://doi.org/10.36763/healthcare.v10i1.99
