Family Centered Empowerment Model Efektif Meningkatkan Mekanisme Koping Orang Tua dalam Merawat Anak Penyakit Kronis
Abstract
This study aims to find evidence of the clinical efficacy of the Family Centered Empowerment Model (FCEM) care concept to improve parents' coping mechanisms in caring for children with chronic illnesses. The method used is a systematic review based on guidelines from Preferred Reporting Items for Systematic Review and Meta-Analysis (PRISMA), which includes e-resources from ProQuest, Science Direct, Scopus, PubMed, and EBSCOhost from 2012 – 2022. Articles included in the systematic review This was made based on the Population Intervention Comparison Outcome Study (PICOS) with a design for (P) Parents/caregivers of children with chronic disease, (I) Concept of Family-Centered Empowerment Model (FCEM) care, (C) There is no comparison intervention, and ( O) Improving coping mechanisms for caring for children with chronic illnesses. The results showed that from 552 articles filtered into eight themes, data found that FCEM can improve parents' coping mechanisms in caring for children with chronic illnesses. In conclusion, FCEM care effectively improves parents' coping mechanisms for children with chronic diseases.
Keywords: Family-Centered Empowerment Model, Chronic Disease, Coping Mechanism
References
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Centers for Disease Control and Prevention. (2020). Chronic Disease Center (NCCDPHP) | CDC. Chronic Disease Data. https://www.cdc.gov/chronicdisease/index.htm
Dardouri, M., Sahli, J., Ajmi, T., Mtiraoui, A., Bouguila, J., Zedini, C., & Mallouli, M. (2020). Effect of Family Empowerment Education on Pulmonary Function and Quality of Life of Children with Asthma and Their Parents in Tunisia: A Randomized Controlled Trial. Journal of Pediatric Nursing, 54(2020), 9–16. https://doi.org/10.1016/j.pedn.2020.04.005
Deyhoul, N., Vasli, P., Rohani, C., Shakeri, N., & Hosseini, M. (2020). The Effect of Family-Centered Empowerment Program on the Family Caregiver Burden and the Activities of Daily Living of Iranian Patients with Stroke: a Randomized Controlled Trial Study. Aging Clinical and Experimental Research, 32(7), 1343–1352. https://doi.org/10.1007/s40520-019-01321-4
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Minooei, M. S., Ghazavi, Z., Abdeyazdan, Z., Gheissari, A., & Hemati, Z. (2016). The Effect of the Family Empowerment Model on Quality of Life In Children with Chronic Renal Failure: Children’s and Parents’ Views. Nephro-Urology Monthly, 8(4). https://doi.org/10.5812/numonthly.36854
Mohammadzadeh, E., Varzeshnejad, M., Masoumpour, A., & Ahmadimehr, F. (2022). The Impact of the Family-Centered Empowerment Model on the Children’s Quality of Life with Chemical Burns and Their Parent’s Perceived Stress. Burns, xxxx, 1–10. https://doi.org/10.1016/j.burns.2022.06.002
Nia, M. N., Mohajer, S., Bagheri, N., & Sarboozi-hoseinabadi, T. (2022). The Effects of Family-Centered Empowerment Model on Depression, Anxiety, and Stress of the Family Caregivers of Patients with COVID-19: a Randomized Clinical Trial. BMC Primary Care, 23(1), 1–10. https://doi.org/10.1186/s12875-022-01795-8
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., McGuinness, L. A., Stewart, L. A., Thomas, J., Tricco, A. C., Welch, V. A., Whiting, P., & Moher, D. (2021). The PRISMA 2020 Statement: An Updated Guideline for Reporting Systematic Reviews. The BMJ, 372. https://doi.org/10.1136/bmj.n71
Shoghi, M., Shahbazi, B., & Seyedfatemi, N. (2019). The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer. Asian Pacific Journal of Cancer Prevention, 20(6), 1757–1764. https://doi.org/10.31557/APJCP.2019.20.6.1757
Van Oostrom, S. H., Gijsen, R., Stirbu, I., Korevaar, J. C., Schellevis, F. G., Susan, H., Picavet, J., & Hoeymans, N. (2016). Time Trends in Prevalence of Chronic Diseases and Multimorbidity Not Only due to Aging: Data from General Practices and Health Surveys. https://doi.org/10.1371/journal.pone.0160264
Wakimizu, R., Fujioka, H., Nishigaki, K., & Matsuzawa, A. (2018). Family Empowerment and Associated Factors in Japanese Families Raising A Child With Severe Motor and Intellectual Disabilities. International Journal of Nursing Sciences, 5(4), 370–376. https://doi.org/10.1016/j.ijnss.2018.09.006
Ahzani, Y., & Agustini, N. (2021). Stres Pengasuhan Orang Tua dari Anak dengan Diabetes Mellitus Tipe 1 di Era Pandemi COVID-19. Journal of Telenursing (JOTING), 3(1), 177–190. https://journal.ipm2kpe.or.id/index.php/JOTING/article/view/2081
Alhani, F., Asghari-Jafarabadi, M., Norouzadeh, R., Rahimi-Bashar, F., Vahedian-Azimi, A., Jamialahmadi, T., & Sahebkar, A. (2022). The Effect of Family-Centered Empowerment Model on the Quality of Life of Adults with Chronic Diseases: An Updated Systematic Review and Meta-Analysis. Journal of Affective Disorders, 316, 140–147. https://doi.org/10.1016/j.jad.2022.07.066
Atout, M., Almomani, E. M., Alhusban, R. Y., Al-Tarawneh, F. S., & Mohammad, S. (2022). Stress Levels and Coping Strategies among Jordanian Parents Caring for Newly Diagnosed Children with Leukemia: A Cross Sectional Descriptive Correlational Study. Journal of Psychosocial Oncology, 40(5), 632–651. https://doi.org/10.1080/07347332.2021.1995802
Centers for Disease Control and Prevention. (2020). Chronic Disease Center (NCCDPHP) | CDC. Chronic Disease Data. https://www.cdc.gov/chronicdisease/index.htm
Dardouri, M., Sahli, J., Ajmi, T., Mtiraoui, A., Bouguila, J., Zedini, C., & Mallouli, M. (2020). Effect of Family Empowerment Education on Pulmonary Function and Quality of Life of Children with Asthma and Their Parents in Tunisia: A Randomized Controlled Trial. Journal of Pediatric Nursing, 54(2020), 9–16. https://doi.org/10.1016/j.pedn.2020.04.005
Deyhoul, N., Vasli, P., Rohani, C., Shakeri, N., & Hosseini, M. (2020). The Effect of Family-Centered Empowerment Program on the Family Caregiver Burden and the Activities of Daily Living of Iranian Patients with Stroke: a Randomized Controlled Trial Study. Aging Clinical and Experimental Research, 32(7), 1343–1352. https://doi.org/10.1007/s40520-019-01321-4
Etemadifar, S., Heidari, M., Jivad, N., & Masoudi, R. (2018). Effects of Family-Centered Empowerment Intervention on Stress, Anxiety, and Depression among Family Caregivers of Patients with Epilepsy. Epilepsy and Behavior, 88, 106–112. https://doi.org/10.1016/j.yebeh.2018.08.030
Garcia Rodrigues, M., Rodrigues, J. D., Pereira, A. T., Azevedo, L. F., Pereira Rodrigues, P., Areias, J. C., & Areias, M. E. (2022). Impact in the Quality of Life of Parents of Children with Chronic Diseases using Psychoeducational Interventions – A Systematic Review with Meta-Analysis. Patient Education and Counseling, 105(4), 869–880. https://doi.org/10.1016/j.pec.2021.07.048
Golubović, Å ., Milutinović, D., Ilić, S., & ÄorÄ‘ević, M. (2021). Empowerment Practice in Families Whose Child Has a Developmental Disability in the Serbian Context. Journal of Pediatric Nursing, 57, 15–22. https://doi.org/10.1016/j.pedn.2020.09.010
Hockenberry, Marilyn J., Wilson, D., & Rodgers, C. C. (2019). Wong’s Nursing Care of Infants and Children (11th Edition). Elsevier, 1. https://doi.org/10.1097/00003465-199111000-00023
Kalleson, R., Jahnsen, R., & Østensjø, S. (2020). Empowerment in Families Raising a Child with Cerebral Palsy During Early Childhood: Associations with Child, Family, and Service Characteristics. Child: Care, Health and Development, 46(1), 19–27. https://doi.org/10.1111/cch.12716
Krisnana, I., Sulistyarini, H., Rachmawati, P. D., Arief, Y. S., & Kurnia, I. D. (2019). Reducing Acute Stress Disorders in Mothers of Leukemic Children by Means of the Family Centered. Cent Eur J Nurs Midw, 10(2), 1035–1040. https://doi.org/10.15452/CEJNM.2019.10.0011
Minooei, M. S., Ghazavi, Z., Abdeyazdan, Z., Gheissari, A., & Hemati, Z. (2016). The Effect of the Family Empowerment Model on Quality of Life In Children with Chronic Renal Failure: Children’s and Parents’ Views. Nephro-Urology Monthly, 8(4). https://doi.org/10.5812/numonthly.36854
Mohammadzadeh, E., Varzeshnejad, M., Masoumpour, A., & Ahmadimehr, F. (2022). The Impact of the Family-Centered Empowerment Model on the Children’s Quality of Life with Chemical Burns and Their Parent’s Perceived Stress. Burns, xxxx, 1–10. https://doi.org/10.1016/j.burns.2022.06.002
Nia, M. N., Mohajer, S., Bagheri, N., & Sarboozi-hoseinabadi, T. (2022). The Effects of Family-Centered Empowerment Model on Depression, Anxiety, and Stress of the Family Caregivers of Patients with COVID-19: a Randomized Clinical Trial. BMC Primary Care, 23(1), 1–10. https://doi.org/10.1186/s12875-022-01795-8
Page, M. J., McKenzie, J. E., Bossuyt, P. M., Boutron, I., Hoffmann, T. C., Mulrow, C. D., Shamseer, L., Tetzlaff, J. M., Akl, E. A., Brennan, S. E., Chou, R., Glanville, J., Grimshaw, J. M., Hróbjartsson, A., Lalu, M. M., Li, T., Loder, E. W., Mayo-Wilson, E., McDonald, S., McGuinness, L. A., Stewart, L. A., Thomas, J., Tricco, A. C., Welch, V. A., Whiting, P., & Moher, D. (2021). The PRISMA 2020 Statement: An Updated Guideline for Reporting Systematic Reviews. The BMJ, 372. https://doi.org/10.1136/bmj.n71
Shoghi, M., Shahbazi, B., & Seyedfatemi, N. (2019). The Effect of the Family-Centered Empowerment Model (FCEM) on the Care Burden of the Parents of Children Diagnosed with Cancer. Asian Pacific Journal of Cancer Prevention, 20(6), 1757–1764. https://doi.org/10.31557/APJCP.2019.20.6.1757
Van Oostrom, S. H., Gijsen, R., Stirbu, I., Korevaar, J. C., Schellevis, F. G., Susan, H., Picavet, J., & Hoeymans, N. (2016). Time Trends in Prevalence of Chronic Diseases and Multimorbidity Not Only due to Aging: Data from General Practices and Health Surveys. https://doi.org/10.1371/journal.pone.0160264
Wakimizu, R., Fujioka, H., Nishigaki, K., & Matsuzawa, A. (2018). Family Empowerment and Associated Factors in Japanese Families Raising A Child With Severe Motor and Intellectual Disabilities. International Journal of Nursing Sciences, 5(4), 370–376. https://doi.org/10.1016/j.ijnss.2018.09.006
