Intervensi dan Dukungan terhadap Psikososial Sibling Anak dengan Penyakit Kronis
Telaah sistematis
Abstract
This study aims to examine in a structured way the research results related to sibling interventions and support programs for children with chronic illnesses and their effects on psychosocial siblings. The method used is a systematic review using six electronic databases: Clinical Key Nursing, Scopus, Science Direct, Sage Journal Taylor & Francis, PubMed, and hand-searched. The keywords used to search for relevant articles in this study were: (sibling OR brother OR sister) AND (chronic OR disability) AND (Intervention OR therapy) AND (psychosocial OR psychology OR social). The results showed that as many as five articles were obtained discussing different types of intervention and support, which positively affected sibling psychosocial conditions. In conclusion, sibling intervention and support can be done through communication, the interaction between siblings, support groups, and art and nature therapy. Sibling intervention and support can positively improve the psychosocial condition of sibling children with chronic illnesses.
Keywords: Support, Intervention, Chronic Disease, Siblings, Siblings
References
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Fjermestad, K., Pat, P., Dearozet, S., Vatne, T., Hafting, M., & Jegannathan, B. (2021). Manual-Based Group Intervention for Siblings and Parents of Children with Neurodevelopmental Disorders in Cambodia. Journal of Developmental and Physical Disabilities, 33(5), 839–856. https://doi.org/10.1007/s10882-020-09777-3
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Kang, S. J., Kim, H. S., & Baek, K. H. (2021). Effects of Nature-Based Group Art Therapy Programs on Stress, Self-Esteem and Changes in Electroencephalogram (EEG) in Non-Disabled Siblings of Children with Disabilities. International Journal of Environmental Research and Public Health, 18(11). https://doi.org/10.3390/ijerph18115912
Kementerian Kesehatan Republik Indonesia. (2022). Keperawatan PTM pada anak dan akhir kehidupan
Kirchhofer, S. M., Orm, S., Haukeland, Y. B., Fredriksen, T., Wakefield, C. E., & Fjermestad, K. W. (2022). Research in Developmental Disabilities Review article A Systematic Review of Social Support for Siblings of Children with Neurodevelopmental Disorders. Research in Developmental Disabilities, 126(April), 104234. https://doi.org/10.1016/j.ridd.2022.104234
Lamsal, R., & Ungar, W. J. (2019). Impact of Growing Up with a Sibling with a Neurodevelopmental Disorder on the Quality of Life of an Unaffected Sibling : A Scoping Review. Disability and Rehabilitation, 0(0), 1–9. https://doi.org/10.1080/09638288.2019.1615563
Lummer-Aikey, S., & Goldstein, S. (2021). Sibling Adjustment to Childhood Chronic Illness: An Integrative Review. Journal of Family Nursing, 27(2), 136–153. https://doi.org/10.1177/1074840720977177
Lynam, A., & Smith, M. M. (2022). Sibling Involvement in Interventions for Children with a Disability: A Systematic Review. Disability and Rehabilitation, 44(17), 4579–4589. https://doi.org/10.1080/09638288.2021.1913247
Mitchell, A. E., Morawska, A., Vickers-Jones, R., & Bruce, K. (2021). A Systematic Review of Parenting Interventions to Support Siblings of Children with a Chronic Health Condition. Clinical Child and Family Psychology Review, 24(3), 651–667. https://doi.org/10.1007/s10567-021-00357-1
Ozbay, Y., & Aydogan, D. (2020). Cumulative Risk Factors and Family Relationship Quality in Understanding Turkish Emerging Adults’ Resilience. Journal of Adult Development, 27(2), 95–107. https://doi.org/10.1007/s10804-019-09344-x
Sánchez-Villegas, M., Reyes-Ruiz, L., Taylor, L. K., Pérez-RuÃz, N. A., & Carmona-Alvarado, F. A. (2021). Mental Health Problems, Family Functioning and Social Support Among Children Survivors of Colombia’s Armed Conflict. Journal of Aggression, Conflict and Peace Research, 13(1), 61–72. https://doi.org/10.1108/JACPR-08-2020-0535
Schamong, A. S., Liebermann-, H., Brockmeier, K., & Kalbe, E. (2021). Psychosocial Well-Being and Quality of Life in Siblings of Children with Congenital Heart Disease : A Systematic Review. Journal of Child Health Care, 0(0), 1–19. https://doi.org/10.1177/13674935211012933
Shivers, C. M. (2019). Empathy and Perceptions of Their Brother or Sister Among Adolescent Siblings of Individuals with and Without Autism Spectrum Disorder. Research in Developmental Disabilities, 92(December 2018), 103451. https://doi.org/10.1016/j.ridd.2019.103451
Sipowicz, K., Podlecka, M., Mokros, Å., Pietras, T., & ÅuczyÅ„ska, K. (2022). Being an Adult Sibling of an Individual with Autism Spectrum Disorder May be a Predictor of Loneliness and Depression – Preliminary Findings from a Cross-Sectional Study. Frontiers in Psychology, 13(August), 1–8. https://doi.org/10.3389/fpsyg.2022.915915
Sommantico, M., Parrello, S., & De Rosa, B. (2020). Adult Siblings of People with and Without Intellectual and Developmental Disabilities: Sibling Relationship Attitudes and Psychosocial Outcomes. Research in Developmental Disabilities, 99(September 2019), 103594. https://doi.org/10.1016/j.ridd.2020.103594
Tyerman, E., Eccles, F. J. R., Gray, V., & Murray, C. D. (2019). Siblings’ Experiences of Their Relationship with a Brother or Sister with a Pediatric Acquired Brain Injury. Disability and Rehabilitation, 41(24), 2940–2948. https://doi.org/10.1080/09638288.2018.1482506
Yaldız, A. H., Solak, N., & Ikizer, G. (2021). Negative Emotions in Siblings of Individuals with Developmental Disabilities: The Roles of Early Maladaptive Schemas and System Justification. Research in Developmental Disabilities, 117(July). https://doi.org/10.1016/j.ridd.2021.104046
Bailey, L. D., Schwartz, L., Dixon-Salazar, T., Meskis, M. A., Galer, B. S., Gammaitoni, A. R., & Schad, C. (2020). Psychosocial Impact on Siblings of Patients with Developmental and Epileptic Encephalopathies. Epilepsy and Behavior, 112, 107377. https://doi.org/10.1016/j.yebeh.2020.107377
Barata, Ö., Acar, I. H., & Bostancı, S. (2022). Associations Among Adolescents’ Mindfulness, Sympathy, Cognitive Empathy, and Sibling Relationships. Psychological Reports, 0(0), 1–20. https://doi.org/10.1177/00332941221097951
Bjartveit, Y., Nikolai, H., Czajkowski, O., Westlye, K., Silverman, W. K., Mossige, S., & Marie, T. (2020). Evaluation of “ SIBS †, An Intervention for Siblings and Parents of Children with Chronic Disorders. Journal of Child and Family Studies, 2201–2217. https://doi.org/10.1007/s10826-020-01737-x
Carlson, K., Kingsley, J., Strimaitis, C., Birnbaum, S., Quinn, T., Espinoza, R., & Rapaport, A. (2020). Nature-Based Group Therapy Reflections: A Grounded Theory Study. Western Journal of Nursing Research, 42(12), 1129–1136. https://doi.org/10.1177/0193945920929950
Collins, B., Darewych, O. H., & Chiacchia, D. J. (2022). Hope and Resilience Outcomes Following Art Therapy for Young People Within a Secure Care Centre. International Journal of Art Therapy: Inscape, 1–9. https://doi.org/10.1080/17454832.2022.2145322
Dinleyici, M., Çarman, K. B., Özdemir, C., Harmancı, K., Eren, M., Kirel, B., Şimşek, E., Yarar, C., Çamurdan, A. D., & Dağlı, F. Ş. (2020). Quality-of-Life Evaluation of Healthy Siblings of Children with Chronic Illness. The Balkan Medical Journal, October 2019, 34–42. https://doi.org/10.4274/balkanmedj.galenos.2019.2019.7.142
Fjermestad, K., Pat, P., Dearozet, S., Vatne, T., Hafting, M., & Jegannathan, B. (2021). Manual-Based Group Intervention for Siblings and Parents of Children with Neurodevelopmental Disorders in Cambodia. Journal of Developmental and Physical Disabilities, 33(5), 839–856. https://doi.org/10.1007/s10882-020-09777-3
Fredriksen, T., Marie Vatne, T., Bjartveit Haukeland, Y., Tudor, M., & Fjermestad, K. W. (2021). Siblings of Children with Chronic Disorders: Family and Relational Factors as Predictors of Mental Health. Journal of Child Health Care. https://doi.org/10.1177/13674935211052157
Fritz, J., de Graaff, A. M., Caisley, H., van Harmelen, A. L., & Wilkinson, P. O. (2018). A Systematic Review of Amenable Resilience Factors That Moderate and/or Mediate the Relationship Between Childhood Adversity and Mental Health in Young People. Frontiers in Psychiatry, 9(June). https://doi.org/10.3389/fpsyt.2018.00230
Gregory, A., Hastings, R. P., & Kovshoff, H. (2020). Academic Self-Concept and Sense of School Belonging of Adolescent Siblings of Autistic Children. Research in Developmental Disabilities, 96(January 2019). https://doi.org/10.1016/j.ridd.2019.103519
Guan, T., Chapman, M. V., Qan’ir, Y., & Song, L. (2021). Psychosocial Interventions for Aiblings of Children with Cancer: A Mixed Methods Systematic Review. Psycho-Oncology, 30(6), 818–831. https://doi.org/10.1002/pon.5684
Hayden, N. K., Hastings, R. P., & Bailey, T. (2023). Behavioural Adjustment of Children with Intellectual Disability and Their Sibling is Associated with Their Sibling Relationship Quality. Journal of Intellectual Disability Research : JIDR, 67(4), 310–322. https://doi.org/10.1111/jir.13006
Hayden, N. K., McCaffrey, M., Fraser-Lim, C., & Hastings, R. P. (2019). Supporting Siblings of Children with A Special Educational Need or Disability: An Evaluation of Sibs Talk, a One-to-One Intervention Delivered by Staff in Mainstream Schools. Support for Learning, 34(4), 404–420. https://doi.org/10.1111/1467-9604.12275
Jones, E. A., Fiani, T., Stewart, J. L., Neil, N., McHugh, S., & Fienup, D. M. (2020). Randomized Controlled Trial of a Sibling Support Group: Mental Health Outcomes for Siblings of Children with Autism. Autism, 24(6), 1468–1481. https://doi.org/10.1177/1362361320908979
Kang, S. J., Kim, H. S., & Baek, K. H. (2021). Effects of Nature-Based Group Art Therapy Programs on Stress, Self-Esteem and Changes in Electroencephalogram (EEG) in Non-Disabled Siblings of Children with Disabilities. International Journal of Environmental Research and Public Health, 18(11). https://doi.org/10.3390/ijerph18115912
Kementerian Kesehatan Republik Indonesia. (2022). Keperawatan PTM pada anak dan akhir kehidupan
Kirchhofer, S. M., Orm, S., Haukeland, Y. B., Fredriksen, T., Wakefield, C. E., & Fjermestad, K. W. (2022). Research in Developmental Disabilities Review article A Systematic Review of Social Support for Siblings of Children with Neurodevelopmental Disorders. Research in Developmental Disabilities, 126(April), 104234. https://doi.org/10.1016/j.ridd.2022.104234
Lamsal, R., & Ungar, W. J. (2019). Impact of Growing Up with a Sibling with a Neurodevelopmental Disorder on the Quality of Life of an Unaffected Sibling : A Scoping Review. Disability and Rehabilitation, 0(0), 1–9. https://doi.org/10.1080/09638288.2019.1615563
Lummer-Aikey, S., & Goldstein, S. (2021). Sibling Adjustment to Childhood Chronic Illness: An Integrative Review. Journal of Family Nursing, 27(2), 136–153. https://doi.org/10.1177/1074840720977177
Lynam, A., & Smith, M. M. (2022). Sibling Involvement in Interventions for Children with a Disability: A Systematic Review. Disability and Rehabilitation, 44(17), 4579–4589. https://doi.org/10.1080/09638288.2021.1913247
Mitchell, A. E., Morawska, A., Vickers-Jones, R., & Bruce, K. (2021). A Systematic Review of Parenting Interventions to Support Siblings of Children with a Chronic Health Condition. Clinical Child and Family Psychology Review, 24(3), 651–667. https://doi.org/10.1007/s10567-021-00357-1
Ozbay, Y., & Aydogan, D. (2020). Cumulative Risk Factors and Family Relationship Quality in Understanding Turkish Emerging Adults’ Resilience. Journal of Adult Development, 27(2), 95–107. https://doi.org/10.1007/s10804-019-09344-x
Sánchez-Villegas, M., Reyes-Ruiz, L., Taylor, L. K., Pérez-RuÃz, N. A., & Carmona-Alvarado, F. A. (2021). Mental Health Problems, Family Functioning and Social Support Among Children Survivors of Colombia’s Armed Conflict. Journal of Aggression, Conflict and Peace Research, 13(1), 61–72. https://doi.org/10.1108/JACPR-08-2020-0535
Schamong, A. S., Liebermann-, H., Brockmeier, K., & Kalbe, E. (2021). Psychosocial Well-Being and Quality of Life in Siblings of Children with Congenital Heart Disease : A Systematic Review. Journal of Child Health Care, 0(0), 1–19. https://doi.org/10.1177/13674935211012933
Shivers, C. M. (2019). Empathy and Perceptions of Their Brother or Sister Among Adolescent Siblings of Individuals with and Without Autism Spectrum Disorder. Research in Developmental Disabilities, 92(December 2018), 103451. https://doi.org/10.1016/j.ridd.2019.103451
Sipowicz, K., Podlecka, M., Mokros, Å., Pietras, T., & ÅuczyÅ„ska, K. (2022). Being an Adult Sibling of an Individual with Autism Spectrum Disorder May be a Predictor of Loneliness and Depression – Preliminary Findings from a Cross-Sectional Study. Frontiers in Psychology, 13(August), 1–8. https://doi.org/10.3389/fpsyg.2022.915915
Sommantico, M., Parrello, S., & De Rosa, B. (2020). Adult Siblings of People with and Without Intellectual and Developmental Disabilities: Sibling Relationship Attitudes and Psychosocial Outcomes. Research in Developmental Disabilities, 99(September 2019), 103594. https://doi.org/10.1016/j.ridd.2020.103594
Tyerman, E., Eccles, F. J. R., Gray, V., & Murray, C. D. (2019). Siblings’ Experiences of Their Relationship with a Brother or Sister with a Pediatric Acquired Brain Injury. Disability and Rehabilitation, 41(24), 2940–2948. https://doi.org/10.1080/09638288.2018.1482506
Yaldız, A. H., Solak, N., & Ikizer, G. (2021). Negative Emotions in Siblings of Individuals with Developmental Disabilities: The Roles of Early Maladaptive Schemas and System Justification. Research in Developmental Disabilities, 117(July). https://doi.org/10.1016/j.ridd.2021.104046
Published
2023-05-31
Section
Articles
Copyright (c) 2023 Hazrina Adelia, Nur Agustini, Dessie Wanda
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